Started back up on the guaifenesin today, and within an hour, the fibro flare up is back. I can turn it on whenever I want. For the first 2 or 3 weeks taking this medication, things were better and I was optimistic. Now I have no confidence and all I can do is make things worse. I took 3 days off of the medication to try to reset. I restarted at a low dose, but it slammed right back into it within an hour. I just can’t handle another monster flare up so soon. The protocol says things are supposed to get worse before they get better. I don’t think they meant 18 days in a row of pure, horrifying hell days though. This all seems so much worse than what anyone in the protocol says. I’m just going to stick with it for 2 or 3 days, then stop the meds for 2 or 3 days, recover, then go again. I’ll do this as long as I can to see if there is any kind of benefit. It’s supposed to get easier after you go through a few of these cycles. It has only gotten more difficult for me. I am so exhausted and burned out from this. I am unable to help myself any other way. Doctors either can’t or won’t help. This protocol is kind of the only thing I have. It’s a “miracle cure”, and it’s a total Hail Mary. And that scares the shit out of me.

By Del

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